Hypertrophic cardiomyopathy
(HCM) resources
Thanh,
Diagnosed with HCM in 2023
Actual consented person with HCM.
HCM PATIENT EXPERIENCES
To learn more about HCM, watch the videos below
Effects of HCM
Hear from people who are living with HCM, including the different ways they are affected physically and emotionally.
Family Testing
Learn about the genetic connection in some people with HCM, including the importance of genetic testing for family members who may be affected.
HCM Diagnosis Journeys
Hear from people discussing how they were diagnosed, including delays and misdiagnoses that led to years of going untreated for HCM.
Whole-Person Burden
Hear how HCM can affect people’s quality of life—physically, emotionally, and socially. See how others are managing.
Role of the HCM Specialist
Learn about the role of an HCM specialist and how they can work with you and your cardiologist to tailor a treatment plan that works for you.
Being an Active Part of Your Care
See how working with your cardiologist and creating a comprehensive plan for your care can help you live a more full life with HCM.
SUPPORT ORGANIZATIONS
Remember, you are not alone
There are many organizations you and others affected by HCM can connect with for information, helpful tips and tools, and support to help you thrive with HCM.
Genetic Cardiomyopathy Awareness Consortium
The Genetic Cardiomyopathy Awareness Consortium is a group of 8 US-based cardiomyopathy patient groups dedicated to raising awareness about the need for genetic testing for patients and family members who have been diagnosed with various cardiomyopathies.
Hypertrophic Cardiomyopathy Association
The Hypertrophic Cardiomyopathy Association provides support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy, while supporting research and fostering the development of treatments.
The Mended Hearts, Inc.
The Mended Hearts® program is the nation’s premier peer-support program for patients who have cardiovascular disease, their caregivers, and families.
WomenHeart
WomenHeart is committed to improving the lives of women with or at risk for heart disease, while fighting for equity in heart health. WomenHeart provides education, support, and training to enable women to take charge of their heart health.
HCM TERMS LIST
Commonly Used Terms List
This resource can serve as quick reference for commonly used HCM terms.
CLINICAL TRIALS
Clinical Trials for HCM
Clinical trials are an important part of the medication development process.
Learn more about current or future clinical trials for HCM at Cytokinetics.
See Clinical Trials for HCMSign up now to receive your free HCM Information
Kit and learn about the HCM Champions Program